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Join the SDS Alliance Community and let us know how we can support you or your work!

Join the SDS Alliance Community and let us know how we can support you or your work!

We would like to invite you to join the SDS Alliance Community - a network of patients, families, researchers, and clinicians.

This questionnaire will ask you questions to inform the SDS Alliance about your needs and interests so that we can tailor our programs accordingly. 

Your participation in our networks and submitting this questionnaire is completely voluntary. Your information
  • will be kept strictly confidential and secure according to the highest industry standards
  • will not be shared with anyone outside the SDS Alliance, and
  • can be withdrawn by you even after you submit it, at any time, by emailing us and requesting that all or some of your information be removed from our databases.

It usually takes about 20-30 minutes to complete the questionnaire.

If you have questions about the survey or the procedures, please contact Eszter Hars, President & CEO, SDS Alliance at +1-617-329-1838 or by email at the email address specified below. Thank you very much for your time and support.

Please start with the questionnaire now by clicking on the Start button below. 
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